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This page was last updated on:
10 February 2003 |
  
This is the story of Daria Louise Ward. She was born on 28 September 1999 weighing 9lbs 11 oz (4410grams).
In May 2000, aged 7months, she was diagnosed with a very rare genetic disorder called Mucopolysaccharidosis (MPS). She has Type 1 - Hurlers Syndrome. There is currently no cure. The only treatment available in Australia in either a bone marrow or cord blood transplant.
Daria received a cord blood transplant at the Royal Children's Hospital, Brisbane, Australia in September 2001. This transplant was made possible due to the miracle arrival of her new baby brother, Caleb, born 27 August 2001. Caleb is a perfect 6/6 HLA tissue type match and his umbilical cord blood and placenta blood were collected at his birth.
Daria's transplant day was the 27 September 2001.... one day before her second birthday.
This site is to keep our friends and family informed of her progress and to help those families that follow in our footsteps to know they are not alone.
What is Hurlers Sydrome? |