PINK DISEASE SURVEY







PINK DISEASE is babyhood mercury poisoning caused when babies with a
heightened sensitivity to mercury were exposed to products containing
mercury such as teething powders, calomine lotion, mercurocrome,
diarrhoea medicine and worming preparations.  The symptoms included
weepy red rash, peeling skin, lethargy, anaemia, sensitivity to light,
respiratory distress,and general ill health. About 25% of babies with
Pink Disease died.  Once mercury was removed from teething powders,
Pink Disease became a rare disease. Only one in 500 babies given
teething powders were diagnosed as having Pink Disease.

Some Pink Disease victims have suffered from poor health or become ill
later in life following further exposure to mercury, particularly from
the most common type of dental filling, which contains 50% mercury.

NAME:(optional)    ................................

EMAIL:(optional)   ................................

ADDRESS:(optional) ................................

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YEAR OF BIRTH: 19____

MALE/FEMALE
______________________________________________________________________

PRELIMINARY QUESTIONS

______________________________________________________________________ TO ANSWER: Circle Y=Yes,N=No,U=Unknown, OR fill in requested details. Q1. Do you have Multiple Sclerosis? ........................ Y N Q2. Do you have Lupus? .................................... Y N Q3. Do you have Bronchiecstasis? .......................... Y N Q4. Do you have Solar Urticaria? .......................... Y N U Q5. Do you have rheumatoid arthritis?...................... Y N U Q6. Have you had mercury poisoning? ....................... Y N U Q7. Do you have a serious psychiatric disorder? If yes, what type? ____________________________________________ Y N U Q8. If you answered Y to any of the above,age of onset: ______years Q9. If you answered Y to any of the above, CAUSE, if known _________ Q10. Have you had any poisoning episode (food/chemical etc.) Y N U Q11. Are you ultra-sensitive to any heavy metals? .......... Y N U Q12. Did you have Pink Disease ............................. Y N U ______________________________________________________________________

PART 1.

SYMPTOMS SUFFERED AS A BABY/TODDLER ______________________________________________________________________ Symptoms suffered in babyhood: TO ANSWER: Circle the appropriate answer: Y = Yes N = No U = Unknown AND fill in any other requested details A1. Red rash .............................................. Y N U A2. Skin peeled off in layers ............................. Y N U A3. Clammy hands and feet ................................. Y N U A4. Very physically fragile ............................... Y N U A5. Constant crying until completely exhausted ............ Y N U A6. Bashed head or body against cot or other objects ...... Y N U A7. Spent time in hospital (if yes, how long? ______ days) Y N U A8. Did your doctor decline to put you in hospital because you were too sick and nothing could be done to help? Y N U A9. Had to be kept in dark room because of photophobia (acute sensitivity to light). ........................ Y N U A10. Putrid Body odour or motions .......................... Y N U A11. Lost appetite ......................................... Y N U A12. Lost weight ........................................... Y N U A13. Lost muscle tone (eg. like a rag doll) ............... Y N U A14. Sucked or chewed fingers/hands. ...................... Y N U A15. Any type of anaemia? If yes, what type? _______________ Y N U A16. Who gave you the above information? ........... _____________ QUESTIONS A16 TO A21 ARE TO BE ANSWERED BY PEOPLE WHO HAD PINK DISEASE A17. If you were already walking when you got Pink Disease,did you have to learn to walk again? ..................... Y N U A18. If not walking when you got Pink Disease, how old were you when you first walked? ................ _______months A19. Age of onset of pink disease. ................ _______months A20. Cause of the disease (if known). ............. _____________ A21. What treatment, if any, where you given? .... _____________ ____________________________________________________________________

PART 2.

CURRENT SYMPTOMS: _____________________________________________________________________ TO ANSWER: Circle the appropriate answer: N = Never R = Rarely S = Sometimes O = Often A = Always yes = yes no = no AND fill in any other requested details

EYES

Have you had or do you have any of the following? B1. Spots or flashes of light (falling like rain before eyes). N R S O A B2. Tunnel vision .......................................... N R S O A B3. Night blindness ......................................... N R S O A B4. Sensitivity to sunlight (need sunglasses even in winter) N R S O A B5. Sockets of eyes ache .................................... N R S O A B6. Retinitis (inflammation of the retina) ................. N R S O A B7. Keratitis (inflammation of the cornea) ................. N R S O A B8. Dimness of vision in one or both eyes? .................. N R S O A B9. Short/long sighted. If yes, which? _____________________ yes no B10. If yes, at what age did you first get glasses. __________ B11. Retinitus Pigmentosa ................................... yes no B12. Corneal dystrophy/degeneration ......................... yes no B13. Been prescribed or used Vitamin A for improved vision .. yes no B14. Been prescribed or used any other vitamins of minerals (eg: Vitamin B2, Zinc) for improved vision. If yes, what? ___________________________________________________ yes no

MOUTH & THROAT

Have you had or do you have any of the following? C1. Thyroid treatment or problems............................. N R S O A C2. Have trouble swallowing ................................. N R S O A C3. Feel as if something is caught in your throat ........... N R S O A C4. Unexplained coughing fits ............................... N R S O A C5. Persistent cough ......................................... N R S O A C6. Pain when yawning ....................................... N R S O A C7. Clenching or grinding of teeth in sleep ................. N R S O A C8. Metallic taste in mouth ................................. N R S O A C9. Swelling of parotid glands (cheek to ear) ............... N R S O A C10. Swelling of Submaxillary Glands (under jaw) .............. N R S O A C11. Treatment for T.M.J. (Temporomandibular joint) ........... N R S O A C12. Excessive cavities in teeth. .......................... yes no C13. Early loss of teeth. If yes, at what age? __________Years yes no C14. Do you have dentures? If yes, at what age? ______Years yes no C15. Any amalgam fillings in teeth? If yes, how many? ________ yes no C16. (a) Have you had all your amalgams removed? yes no (b) If yes, by a dentist specialising in amalgam removal? yes no (c) Was the removal followed by a mercury detoxification program? yes no (d) Has your health improved since the amalgam removal? yes no If yes, how much? __________________________________ (e) Has your health worsened since the amalgam removal? yes no If yes, how much? __________________________________

BLOOD

Have you had or do you have any of the following? D1. Iron deficiency anaemia. ................................ N R S O A D2. Vitamin B12 (pernicious) anaemia. ....................... N R S O A D3. Any other type of anaemia? If so, type? _________________ N R S O A D4. Frequent bouts of anaemia for no known reason? .......... N R S O A D5. Excess iron in your blood? .............................. N R S O A D6. Unexplained low haemoglobin (blood) count? ............. N R S O A D7. Any unexplained unusual results from blood tests? ....... N R S O A

MUSCLES & BONES

Have you had or do you have any of the following? E1. Poly-myalgia (painful muscles & ligaments, especially in your feet, elbows and knees) ............................ N R S O A E2. Arthritis like symptoms ................................ N R S O A E3. Poor muscle tone in general or loss of muscle tone ...... N R S O A E4. Pectoral and pelvic girdle (hips "click") ............... N R S O A E5. Spurs on heels .......................................... N R S O A E6. Costal chondritis (painful cartilage connecting ribs & sternum) ................................................ N R S O A E7. Loss of strength in arms (can't hold things above head). . N R S O A E8. Osteoporosis (brittleness and softness of bones). ........ yes no

CO-ORDINATION

Have you done or do you do any of the following? F1. Do you drift when walking (into walls, etc.) ............. N R S O A F2. Do you stumble when walking. ............................. N R S O A F3. Do you have poor hand/eye co-ordination (eg. go to open fridge and miss handle completely, type/write words in a jumbled fashion). ...................................... N R S O A F4. Do you have a poor sense of distance? .................. N R S O A F5. Do you have a poor sense of direction? .................. N R S O A F6. Are you clumsier than average? If so, lots? ______________ N R S O A F7. Do you jumble your words and/or have difficulty communicating what you are thinking in words or writing? . N R S O A

ALLERGIES & CHEMICAL SENSITIVITIES

Are you allergic/sensitive to any of the following? G1. Foods? If yes, please list? ____________________________ yes no G2. Medicines? If yes, please list? ________________________ yes no G3. Cosmetics? If yes,please list? __________________________ yes no G4. Chemicals? If yes, please list? ________________________ yes no G5. Metals? If yes, please list? ___________________________ yes no G6. Food additives? If yes, please list? ___________________ yes no G7. Do you suffer from hayfever? If so, severely? ____________ N R S O A

GENERAL

Have you had or do you have any of the following? H1. Headaches? .............................................. N R S O A H2 . Migraines? If yes, how severe? _________________________ N R S O A H3. Unexplained tiredness? .................................. N R S O A H4. Do you feel "hungover" in the mornings for no reason? ... N R S O A H5. Chronic tiredness? ...................................... N R S O A H6. Do you prefer salty foods to sweet foods? ............... N R S O A H7. Do you prefer sweet foods to salty foods? ............... N R S O A H8. Do you feel the cold more than average? ................. N R S O A H9. Do you feel the heat more than average? ................. N R S O A H10. Do you sweat excessively? ................................ N R S O A H11. Do you sweat excessively on your face? .................. N R S O A H12. Do you have numbness in any part of the body? ........... N R S O A H13. Ear Problems? What type? _________________________________ N R S O A H14. Excessive pain if you bump your legs/arms? ............. N R S O A H15. Excessive body odour? ................................... N R S O A H16. Poor nutritional absorption? ............................. N R S O A H17. Do you have digestive problems?........................... N R S O A H18. Do you have constipation? ................................ N R S O A H19. Do you have diarrhea? .................................... N R S O A H20. Trouble losing weight? ................................... N R S O A H21. Trouble gaining weight? .................................. N R S O A H22. Do you have a poor immune system? ....................... N R S O A H23. Have you suffered from any form on cancer? If yes, what type? _____________________________________________ yes no H24. What type of medication, if any, are you on? _____________ __________________________________________________________ H25. Kidney problems?If yes, type? ____________________________ yes no H26. Liver problems? If yes, type? ____________________________ yes no H27. Bladder problems? If yes, type? _________________________ yes no H28. Have you been DIAGNOSED as having Chronic Fatigue Syndrome or Myalgic Encepthalomyelitis? If yes, CFS or ME? _______ yes no H29. Have you been DIAGNOSED as having Multiple Sclerosis? ... yes no H30. Have you been DIAGNOSED as having any auto-immune disorder? yes no H31. Have you been DIAGNOSED as having Lupus? ................. yes no H32. Does your doctor suspect you have an auto-immune disorder? yes no H33. Do you suffer from loss of hearing? ..................... yes no H34. Do you have mis-shapen fingers or nails? ................ yes no H35. Do you have problems with your hands and/or feet? If yes, give details. ___________________________________________ yes no H36. Do you have Rheumatoid Arthritis? ....................... yes no H37. Do you have Raynaud's Syndrome? .......................... yes no H38. Do you have Scleroderma?................ ................. yes no H39. Do you suffer from Restless Legs Syndrome?................ yes no H40. Have you had exposure to mercury from any source other than dental amalgams? Mercury is still found in a number of medicines, contact lens solutions, and in the work place. If yes, give details at the end of the survey .... yes no H41. Do you have Ross River Fever? ............................ yes no

SKIN

Have you had or do you have any of the following? J1. Skin problems? If yes, what sort? _______________________ N R S O A J2. Icthyotic skin (dry scaly skin)? ........................ N R S O A J3. Psoriasis (red patches covered by grey scaly skin)? ..... N R S O A J4. Is you skin prone to rashes? ............................ N R S O A J5. Do you sunburn easily? .................................. N R S O A J6. Do you get a rash from sunlight exposure?................. N R S O A J7. Do you get red spots from sunlight exposure? ............ N R S O A J8. Are you prone to dermatitis? ............................ N R S O A J9. Is your skin dry (for a person your age)? ............... N R S O A J10. Was your skin dry as a child? ........................... N R S O A J11. Did you have wrinkly hands as a child? ................... N R S O A J12. Are you unusually fair skinned (not inherited)? .......... N R S O A

HEART & LUNGS

Have you had or do you have any of the following? K1. Asthma? If you do, age of onset: ____________________years N R S O A K2. Breathlessness from even minor exertion? ................ N R S O A K3. Bronchitis? ............................................. N R S O A K4. Chest/heart pains (angina attacks)? ..................... N R S O A K5. Tachycardia (racing heart)? ............................. N R S O A K6. Poor blood circulation (pins & needles)? ................ N R S O A K7. Bronchiectasis (dilation of the small bronchial tubes)? .. yes no K8. Any other lung disorder? If yes, type? ___________________ yes no K9. Mitral valve problems? ................................ yes no K10. Heart murmur? ........................................... yes no K11. Heart problems? ......................................... yes no K12. Do you suffer from unexplained dizzy spells? ............. yes no K13. Do you have High/Low/Normal blood pressure? ............. High Low Normal

STRESS LEVEL, EMOTIONAL WELL-BEING & PERSONALITY

Have you had or do you have any of the following? L1. Nightmares? If yes, how bad? ____________________________ N R S O A L2. Insomnia? ................................................ N R S O A L3. Do you need excess sleep? If yes, how much sleep to you need each day? ___________________________________________ N R S O A L4. Depression? If yes, how severe? ________________________ N R S O A L5. Suicidal thoughts? ....................................... N R S O A L6. Feelings of helplessness? ............................... N R S O A L7. Do you suffer from forgetfulness? ....................... N R S O A L8. Do you lack self-confidence? ............................ N R S O A L9. Are you a nervous person? ............................... N R S O A L10. Do you lack attention in conversation? .................. N R S O A L11. Are you shy? ............................................ N R S O A L12. Are you sensitive to noise? ............................ N R S O A L13. Are you a "loner" or do others think you are a loner? ... N R S O A L14. Are you moody or do others think you moody? ............. N R S O A L15. What is your stress tolerance? .......................... Low Average High L16. How much stress do you suffer? .......................... Low Average High L17. What is your emotional level? ............................ Low Average High L18. Physical health level on a scale of 1 to 10 (10 best)..... ______ L19. Have you been diagnosed as having clinical depression? ... yes no L20. Have you been diagnosed as having bipolar disorder (manic depression)? ............................................. yes no L21. Have you been diagnosed as having schizophrenia? ......... yes no L22. Have you been diagnosed as having a schizoid personality? yes no L23. Have you been diagnosed as having any mental illness? .... yes no L24. If you have answered YES to any one of questions L18, L19, L20, L21 OR L22, is the illness inherited? .............. yes no unknown

BACKGROUND INFORMATION

Have you had - M1. Whooping Cough .......................................... yes no M2. German Measles .......................................... yes no M3. Measles ....... .......................................... yes no M4. Glandular Fever .......................................... yes no M5. Scarlet Fever ........................................... yes no

FOR WOMEN ONLY:

N1. Have you suffered from fertility problems? .............. yes no N2. Have you had any miscarriages? .......................... yes no N3. Have you had any still-births? .......................... yes no N4. Have you had a hysterectomy? If yes, why & what age? ... yes no Why?_____________________________________Age?_____________ N5. Do you or did you have excessively painful & debilitating period pain? ........................................... N6. Did you suffer any other gynaecological problems? ...... N R S O A N7. Is your hair unusually thin? ............................ N R S O A N8. Do you suffer from unexplained hair loss? ............... N R S O A N9. Do you need to wear a wig? ............................. yes no N10. Have you given birth to a handicapped child? If yes, what type of handicap? ___________________________________ yes no N11. Do you or did you have premenstrual syndrome? If yes, how bad? (slight/average/severe/incapacitating) _____________ N R S O A

MEN ONLY:

P1. Have you had fertility problems? ........................ yes no P2. Have you suffered from Young's Syndrome? ................. yes no P3. Have you had any other men's problems? .................. yes no P4. Do you have unexplained hair loss (not inherited)? ....... yes no

YOUR COMMENTS:

You may have problems not mentioned above, or be suffering very severely, or some of the problems you have have an explanation (eg: your kidney problems are inherited, or your health problems are caused by old age, or your hearing loss is due to industrial deafness). PLEASE GIVE US ANY INFORMATION YOU THINK MAY BE USEFUL. ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ ______________________________________________________________________ RETURN THIS SURVEY TO: Diane Farnsworth, 29/26-38 Halliday Street, EAGLEBY, QLD., AUSTRALIA, 4207. Internet: www.users.bigpond.com/difarnsworth/ Email: difarnsworth@bigpond.com


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