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Links for MND/ALS Sites
This page contains links to web sites and pages having to do with MND. The
information is divided into the following categories:
(If you would like your Site listed here please e-mail
me)
Links to Australian MND related Sites (OzPALS)
 | Keith Sunbeam.
Keith is a real Aussie character who lives in Brisbane and coined the phrase OzPALS.
|
| Steve Shackel
This Site is one of the busiest MND Sites around , go their for hope. |
| Robin Balsdon
"Enjoying life, one neurone at a time"
Robin's Site is very pleasing in both content and graphically. His
personal story is a good read too. He has a Family and Links page as well |
Personal Websites from PALS in America.
| ALS Network
To provide a central site where PALS
can track and follow the treatment programs and ALS status of other PALS in the battle
with ALS. |
| Ride for Life
This is the best ALS/MND Site I've
seen |
| Doug Jacobson's
ALS page |
| Marc Reynolds
"I am a victim of ALS who has lived with ventilator support since 1986. My site
includes my memoirs and links to sites which pertain to ALS. " |
| March of Faces
The mission of the ALS March of Faces Banner is to accelerate the process of finding a
cure, through Awareness, Advocacy and Fundraising Events, so that The Banner will
never have to be displayed again. |
| Over
5 Club (PALS who've lived more than 5 years)
A Web Site to display profiles of Over 5 Club members.
|
| Gary Nicklas's
Sanofi Page
This page is Garys record of experiences in the drug trial commonly referred to as
"the Sanofi trial". |
| Al Pickens
Al has a great Site and in his story tells us about the genetic form of ALS. He also
has a terrific links page which puts this one to shame. |
| Robb Thompson
Rob has put together an excellent Site which features his personal story and many
links to others personal stories and ALS related information. |
Personal Websites from PALS in Europe
| Scandinavian ALS webpage |
| Birgers Scribble
Birger has no idea why he got ALS, but he is certain that the disease serves a purpose |
| Steve
Killeen (Dec.)
This site contains news,general information on Motor Neurone Disease (MND),Amyotrophic
Lateral Sclerosis (ALS),Lou Gerhig's Disease and the activities of the Irish Motor
NeuroneDisease Association (IMNDA) |
The following Websites provide equipment and devices to make a PALS life
easier.
| Onscreen Keyboards
MY-T-SOFT AT (I use this)
"A few years back my ALS progressed to the point where I could no
longer type with even a mouth pointer. I priced some onscreen keyboards which have
been advertorialized in ALS DIGEST. I was disheartened by the price, for example
Wivik retails for $A400-$A600 in Australia. The disabled get slugged at the checkout
every time. Eventually on the internet I found the homepage of the IMG Inc http://www.imgpresents.com/ they have a
range of onscreen keyboards from about $A60-$A180, I was so impressed with
their MY-T-SOFT AT that I approached them to become their distributer in Australia &
New Zealand.Those downunder can Download a Demo from http://www.fastlink.com.au/clients/ergosoft/ .Please check
out the MY-T- Product range, your pocket will thank you".
Vince Fester |
| Gus Communications
Gus Communications has developed several software solutions specifically for ALS All of
their products can be obtained from our website at NO CHARGE and evaluated for up to
30 days
*Are you looking for a way to move the cursor around the screen but
cannot, physically, move the mouse?
*Are you looking for a way to send keystrokes into Windows programs but
cannot, physically, use the computer's keyboard?
*Are you looking for software that will create speech and make it
possible to communicate?
Gus has all the answers. |
| Augmentative/Alternative Communication
(AAC)
When speech and writing become non-functional. A good place to
find basic information is AAC. Included on this webpage are links to the majority of
companies in the world that develop and manufacturer AAC devices and accessories.
|
| Virtual On-Screen Keyboard
Recently sent out with the "Brick by Brick" Newsletter, is now available to
download from the ALS March of Faces website and it's absolutely free! |
| CindyLift
CindyLift is a patient transfer device that makes transferring easier and safer on
both patient and caregiver. Used in homes and schools. |
| Mindmouse from
Leapfrog technology |
| Eyeon
from Eye control technology |
| QuickGlance from
Eyetech Digital |
Medical and research Sites. (Taken from Steve Shackel's Site)
Alternative Medicines and treatments.
| Steve Shackel
Steve has done a tremendous amount of research into Antioxidents and
Liver function. He is doing a well documented self study and the results are amazing. |
| Dennis Luxford
Dennis has documented his treatment using Cayce's methods. |
| Edgar
Cayce
ARE's Site has heaps of information about Cayce and they also
sell products that he recommended. |
| Site |
| Site |
Below are various links for communicating with other PALS
| MND and Friends Chat group. Join
John and Graham for a Chat. They and others are on twice a day every day |
| Bob Broedels ALS Digest
This E-mail Newsgroup is the ultimate
for information and Bob sends all the latest news, research, alternatives, drugs, quackery
etc. straight to you via e-mail. Just press here to subscribe and type in Subscription
for the subject, then press send. This is a must for all PALS. Back issues are
available to read and download here.
|
| Jimmy
Compton
Have a Chat to Jimmy and other PALS |
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OzPALS
This Aussie version of ALS Digest was set up by Mr OzPALS himself Keith Sunbeam. Click on
the icon to subscribe. |
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