I was trained as an Engineer and have spent my working life developing cutting-edge technology. I have started five companies, one of which I took public in 1983. My company worked with M.I.T. and Carnagie-Mellon University to develop the world’s first commercial artificially intelligent mobile robots. Although I would like to say that the protocol that I am following and about to describe to you is scientifically developed and thoroughly tested, it unfortunately is not. I pressed every scientist and engineer I know into service to help me find historic and current theories, treatments and information on ALS. I have analyzed and researched (to the extent possible) everything that I am doing or taking. The hard facts are that Western medicine can’t cure or even help us, alternative philosophies and treatments provide the only options. I have my own theories about most of what is working for me, but scientific data is non-existent. Your doctor, upon hearing of alternatives such as Edgar Cayce, Wilhelm Reich and Dr. Hulda Clark, will tell you it’s CRAZY. Remember: these are the same doctors that recently told you that you are about to die from a hideous syndrome best portrayed in a horror movie. Your mind remains perfectly functional and your body disintegrates around you. If you’re going to die (and we all are, sooner or later), make up your mind to do it on your terms, not theirs. To quote Bernie Siegel: “The simple truth is, happy people generally don't get sick. One's attitude is the single most important factor in healing or staying well. Those who are at peace with themselves and their immediate surroundings have far fewer serious illnesses than those who are not.”
My symptoms became a concern to me in December 1996 when the fingers of my left hand were becoming progressively more numb. The numbness became worse over the ensuing months. Concurrently, I was experiencing a substantial weakening of my left shoulder and upper arm, which was becoming less and less flexible and ultimately marginally functional. I had experienced a rather rapid atrophy of the muscles in the left arm and shoulder. I was experiencing severe fasciculation’s in the calves of both legs and the muscle strength in my legs was starting to degrade at an accelerating rate. I had no clue why this was occurring and the doctors were baffled both here in CA and on the East Coast. Pinched nerve was the battle cry, from three separate neurologists. Although the symptoms didn't match the treatment, on April 23rd 1997 I had a bone spur removed from the inside of my spine requiring cervical vertebrae 3 & 4 to be fused together. The problems continued. In August 1998, I was given the ALS diagnosis (the death sentence) from Drs. Layzer & Olney at the University of California, San Francisco (UCSF) Neurology Center (415) 476-4173.
CHRONOLOGY
December 1996 first sought medical assistance for numbness in my hand.
April 23, 1997 Surgery cervical vertebrae 3 & 4.
August 8, 1998 ALS diagnosis.
August 10, 1998 started taking a few antioxidants, http://lef.org/shop/help.html
September 16th 1998 started Rilutek.
September 18th 1998 started the Edgar Cayce Baar Wet Cell. www.are-cayce.com/index.htm
September 24th 1998 started the Edgar Cayce Radiac.
December 16th 1998 started Neurontin.
December 18th 1998 STOPPED taking Neurontin & Rilutek.
December 20th 1998 started an extensive regime of antioxidants and supplements, changed my diet
and eating habits and made many additional changes in my lifestyle.
January 1999 the decline slowed.
February 1999 the decline stopped
March 1999 the ALS finally started to slowly reverse. With painful exercise I started observing very slight muscle recovery, increased strength, energy and additional dexterity.
October 23, 1999 Got married.
Every morning I do the exercises described in “Edgar Cayce-The Sleeping Prophet" by Jess Stearn (pp. 137-138), keeping my major joints mobile causes pain, but helps. The fingers of my left hand are still a little bit numb but continue to improve. Strength, dexterity and tactile response are returning, albeit at a slow rate.
I believe that the ALS has been severely curtailed and that I am recovering from its devastating effects!
Every morning I make a LARGE fresh whole fruit drink for breakfast in a blender called a "Vita-Mix.” (This is not a juicer, it grinds everything.) See “Fit for Life” by Harvey Diamond. Much of his stuff is completely goofy and not plausible but he makes a few good points regarding fruits, vegetables and avoiding dairy, forget his premise on weight loss. The exact composition of the morning smoothie changes weekly (depending on what is in season) with a variety of combinations of apple, lemon, orange, kiwi, watermelon, and fresh or frozen strawberry, peach, blueberry, raspberry, etc, etc, etc, sometimes with fruit sorbet or ice (it’s better cold). I use an orange, apple or carrot juice as a base, add a packet of powered gelatin (see
Edgar Cayce A.R.E.)
, 1 tablespoon (Tbsp.) cold pressed flax seed oil, 1Tbsp. wheat germ, .1 Tbsp. rice bran, 5 drops (dps) ginger extract, 8 dps concentrated grapefruit extract, 20 grams of Whey Protein Isolate powder (Life Extension Foundation,
http://www.lef.org) and sometimes stevia or 1 Tbsp. honey. Press the button and a minute later its done and I drink it with the myriad of antioxidants.
Every morning I take Cordyceps Sinensis and Creatine powder along with a long list of other antioxidants, and vitamin
supplements. The list of antioxidants, and vitamin supplements can be provided to you separately.
I drink 1 gallon of personally distilled water (commercially distilled water in plastic containers can pick up a high level of plasticizers and may also leach solvents and releasing agents into the water). I also have a water bottle that I travel with that looks normal but one fifth of its interior is a filter and removes all the nasty things we need to avoid ingesting.
http://www.walkabouttravelgear.com/penta.htm
, www.walkabouttravelgear.com/penta.ht
.
If you prefer bottled water, read the label carefully to be sure you're not getting "spring water" that's actually bottled from the municipal water supply. The Food and Drug Administration (FDA) regulates bottled water. Even so, a 4-year test of 103 bottled brands by the environmental resource group Natural Resources Defense Council found that a third of the brands contained bacteria or other chemicals that exceeded industry guidelines, and although the concentration of heavy metals may be within EPA guidelines they ARE NOT within yours. Read about mercury poisoning, it’s almost identical to ALS.
I take Immunocal every afternoon in a half a cup of fruit yogurt.
http://www.immunocal.com
. or http://www.a-better.com/immunocal.htm
. For more information, you can e-mail Jerry at chopin@value.net
.
Immunocal, deals with the issue of glutamate (it is part of a tripetide) Immunocal acts as a precursor. Don't know if it is the answer, but they seem to be on the right track.
"The answer to curing ALS must be in the elimination of the nerve (myelin sheath) destruction. The 'cocktail' that will eventually be of greatest benefit has yet to be formulated. It might contain glutamate
N-methyl-D-aspartate (NMDA) and non-NMDA receptor antagonists, antioxidants
or a combination of trophic factors and neuroprotective agents."
I have eliminated ALL beef, pork, poultry, fish and shellfish because of the confirmed presence of heavy metal, steroid, and antibiotic concentrations. I have eliminated all hydrogenated oils as well as artificial colors/sweeteners, caffeine and alcohol (all established toxins) as well as carbonated drinks which enhance absorption of toxins. I use only organic extra virgin olive oil and avoid all other processed oils, use only tiny amounts of unsalted butter (unsalted butter is obvious if it is rancid), avoid lard and anything deep-fat fried. I avoid processed sugar and try to eat organic fruits and vegetables whenever I can, and wash them well when I can't, soaking them in water with several drops of concentrated grapefruit extract, then peeling them. The goal is to avoid adding additional oxidizing agents to an overtaxed system. That includes eggs, cooking the yoke broken allows the creation of free radicals.
You should have comprehensive testing done. Get your local doctor to prescribe the tests. Don’t rely on local labs to have them done. You need to take charge of your own care. There are exceptional independent labs that will send you the kits with instructions on how to prepare the samples. Great Smokies Diagnostic Laboratory Ashville, NC (828) 253-062, (828) 522-4762. Tests you should have done include comprehensive detox profile, comprehensive digestive stool analysis, comprehensive hormone, and elemental urine analysis. Be sure in the detox profile that they test the “free radical markers” including Urine Lipids and Catechol. Also check to see if melatonin and testosterone are in line with your circadian cycle.
I have eliminated aluminum/alumnae from pans, vessels, foods, deodorant, and detergents, as well as fluoride from toothpaste.
Every evening I spend at least 30 minutes connected to the Baar Wet Cell Battery, (Cayce Reading 5019-1 M 34)
( http://www.baar.com/wetcell.htm
) or you can call Baar Products at 1-800-269-2502.
Every evening for the 30 minutes that I am using the wet cell I listen to subliminal tapes using visualization techniques, visualizing myself recovering.
On stressful days I play relaxing music in the background and after using the Wet Cell I have a 30-50 minute massage with the Cayce recommended oil,
( http://www.are-cayce.com/index.htm
) delivered with many positive thoughts. It takes a large commitment of time and effort. When traveling, I take the Radiac
( http://www.baar.com/index.htm
) with the solution jars and of course the massage oils. It is less relaxing and a lot of gymnastics rubbing myself down with the oil. I suspect that some of the therapeutic value of the Cayce solution is the absorption of the oil through the skin. Don’t forget to get a filter on your shower or bath water that removes chlorine and heavy metals (see water filters above).
Twice per week I use a frequency generator or use a Zapper based upon a design by Dr. Hulda Regehr Clark, N.D., Ph.D.
( http://www.sota-inc.com/hulda.htm
) According to Dr. James J. Barile and several published studies, 85-92% of the US population suffers from some type of parasites. The settings for the frequencies for ALS and other diseases can be found in Clark’s book “The Cure for all Diseases”, She makes a very compelling argument regarding parasite infestation. A small unit can be purchased for $49.00 from Bach-Thor at
http://www.surf.to/zapperman
, or http://www.sota-inc.com/zapper
but I would strongly suggest a frequency generator, http://www.cs-sales.com
which can be set to (the specific frequency) target specific parasites, as opposed to the Zapper. I have major concerns about the broad spectrum covered by the “Zapper”. More information on request.
I also take the Edgar Cayce recommended Carbondex, Carbon Ash, and then use an ultra violet (UV) lamp twice a month.
I have found placing magnets several days per week, or every other day on the offending muscles in my arms/legs seems to reduce discomfort, increase circulation as well as using "spot magnets" on localized pain. “Biomagnetic and Herbal Therapy” Dr. Michael Tierra L.AC. O.M.D. Additional information available.
Additional interesting reading is "The Body Electric" by Dr. Robert Becker, and “The Shocking Truth About Water” Dr. Paul Bragg.
I have found inspiration and the other half of my soul in my wife and that has given me a more positive attitude, which is reinforced every day. Even the bad days are good. Peggy and I were married on October 23, 1999 and plan to spend many years with her.
I wish you renewed health. Positive attitude is everything.