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Rule No 1 Be consistent!There is no point having one person doing one thing or everyone doing different things when it comes to behaviour management. As with any child who has Mum doing one thing and Dad doing the opposite, an Angel just can't resist playing one parent off against the other. The other possibility is that you will have a confused and frustrated child who is going to take it out on somebody.
What's the Problem? Angel to Mum/Dad or Can I Have Your Attention! Quite a lot of the things that our son or daughter does are attempts to communicate. The next time you get a slap on the face or a bite on the hand, it may be that they are trying to get your attention. As your son or daughter is unable to communicate verbally they resort to pre-verbal communication. The more you talk to your Son or daughter the more you will learn about them and HOW they communicate. You will become more intuitive in recognising their attempts to communicate and respond appropriately to them. Your Son or daughter just loves attention. You will also learn to recognise the difference between them trying to communicate and unacceptable behaviour.
Rule No 2 Is it a medical problem?Always ask yourself this before assuming that you are seeing a behaviour as there could be a medical reason for what you are seeing. E.g; If your son or daughter is banging their head they may be trying to overcome the pain of a toothache or earache.
Its a behaviour - What can I do to stop it? Well actually you can't - you have to replace it with a more acceptable behaviour.How? By using "Positive Behaviour Strategies/Intervention/Modification/Management" (they all mean more or less the same thing).
Rule No 3 Expect to see an increase in the behaviour before things start to changeSimply put you have learnt that if you turn the kettle on it will eventually boil (provided you have enough water in it). If nothing happens what would you do? That's right you'd try again. You have just used a behaviour. There is no difference with someone who is using unacceptable behaviour - they'd just try again and again until they realised that it doesn't work anymore. Then they would try something different to try and get the same result - just like you would with the kettle.
What is Positive Behaviour Management ..? Literally volumes have been written on this subject. Briefly it is when you teach the behaviour you want to see and reinforce it by using rewards. Remember when you were a child and got something you wanted after you cleaned your room? No clean room and no reward? That is Positive Behaviour Management.But how do I teach my Angel this positive behaviour? Just as you won't get rich overnight, your Son or daughter may take a while to pick up the behaviour that your are teaching them. It can take a lot of patience and could even be frustrating. Some things take years for them to learn other things they pick up pretty quickly (show me an Angel who didn't learn the first time the effect of playing with the remote control for the TV or video!)Please remember that you are "working" with someone who has a functioning age of around 2 years old. Well maybe I shouldn't have said that - but it should put things into perspective. So how come this doesn't happen at school? Remember your old school class timetable? It told you how many periods there were, what time from and what time to, as well as the recess and lunch breaks. This is a STRUCTURED ROUTINE. You knew what to expect and what was expected of you each class. You could only focus on the subject and only had access to equipment that was relevant to the subject. No, you don't need to turn your home into a military establishment. What you can do is provide an informal structure and routine. The more you involve your Son or daughter the less time they have for getting into mischief and the less time you need to spend on stopping them from getting into mischief. In turn they are getting the attention that they so enjoy. But I've tried everything and nothing works! Before you call in the local Program Support or Behaviour Intervention Support Team, please remember everything they know about your Son or daughter will have more than likely been told or taught to them by you. So before you call them have you spoken to other parents with an Angel to see what they have tried? A very good source for this type of information is the Angelman Syndrome Listserve. How soon did you expect to see changes - are your expectations realistic or reasonable? If you still feel that nothing works, now is the time to get serious and learn your ABC. Antecedent - what happened immediately before the behaviour?Behaviour - what it is you are observing that you want to change?Consequence - what happened after the behaviour? Why the need for the ABC? Because this is the sort of information that the professionals you will be dealing with, will ask for.e.g; You see your Angel mouthing some paper (Antecedent and a Behaviour) you take it off them (Antecedent) and they bite you (Behaviour) you throw the paper in the bin (Consequence) Alternative response by you could be:- You ask your son or daughter to give it to you and hold your hand out (Antecedent) your son or daughter gives it to you (Behaviour) you say thank you and smile before taking the paper to the bin (Consequence). You then remove all paper that is within reach and put it in a place that is out of reach for your son or daughter (Consequence). Each time that your son or daughter hands you the paper you give them the same response - a thank you and a smile. It would not be a good idea to give them a biscuit, for example, as they may learn that they will get a biscuit each time that they mouth paper. You are then reinforcing negative behaviours. By following the ABC you learn to identify the signs that tell you that a behaviour is about to occur, you learn what works in changing the behaviour and the consequences that work for you.
This is all too technical! - How about some ideas? Diversion or re-direction The most useful instant quick fix to behaviours. You get your son or daughter to focus onto something else that needs them to concentrate enough so that they stop using the behaviour. Not always successful as they can be very single minded when they want to be. Diversion or re-direction is not a long-term solution to change behaviour, as it may not be able to be used everywhere, as every situation is different.Game Play Try turning it into a game - this is a form of diversion or re-direction, however this is more positive as you've changed it into a game.Ignoring This can be used with behaviours that you know are attention seeking. It can be a big ask if you're being hit to get your attention. But if you turn away and move yourself out of reach then it hasn't worked, bet your son or daughter will try something else!Removal Especially in regard to assaultive behaviours. The victim is removed from the scene and a lot of fuss is made of them.Escape - your angel not you This is hard, because they are in a situation that they are not comfortable with and want to get away from it. There are even angels who despise water and will do anything to be away from it. The problem here is that they have learnt through reinforcement to dislike what is happening. How do you change that? Try other methods that make it easier for them to adapt and learn to accept what is happening as positive rather than negative. E.g; an angel who hates having their hair brushed - try water with some conditioner mixed in a spray bottle, sprayed onto the hair before brushing or combing. Try not to test their attention span for too long - keep it short and simple.
It still doesn't work. The next step will involve a psychologist and/or a behaviour intervention program team.
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Other sites with useful information about working with Challenging Behaviours Inala - Gentle Teaching
for severe behaviour problems Challenging Behavior: A Model for Breaking the Barriers to Social and Community Integration Behavior Management
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Last Updated: 13 July 2002