NSW Disability Resources

NSW

Angelman Syndrome Information

Contact:-

	Angelman Syndrome Association PO Box 554 Sutherland NSW Australia 2232 Phone: (02) 9520 5857 Email: kevink@angelmansyndrome.org
	Angelman Syndrome Clinic C/- Department of Developmental Assessment The St George Hospital PO BOX 90 Kogarah NSW Australia 2217 Phone: (02) 9587 2444

The clinic can provide information to families about the different aspects of Angelman Syndrome and is compiling a database of information relevant to Angelman Syndrome in Australia. Advice can be obtained about the different medical problems covered by Angelman Syndrome and where to go to get further help with specific medical problems.

Medical
Most medical problems can be handled initially by your family doctor or paediatrician who may refer you to a specialist for further treatment and advice.

Below is a list of some of the medical problems that you may experience with a child with Angelman Syndrome and the medical specialty that caters for that area.

The advice given here is not a substitute for the proper care provided by a family doctor or specialist.

Early childhood (0-2 years)

Poor Feeding or Suckling	- your Family Doctor who may refer you on to a Paediatrician
Vomiting or Reflux	- your Family Doctor who may refer you on to a Gastroentorologist
Weight Loss	- your Family Doctor who will refer you on to a Gastroentorologist

Location

Name

Phone

Facsimile
Email
Internet
Address

Kogarah

Diagnostic And Assessment Service

Dept of Community Services

Cnr Railway Pde &
Belgrave St
Kogarah
NSW 2217

(02) 9587 2444

Fax: (02) 9588 3135

Zetland

Tumbatin Developmental Clinic

Royal South Sydney Community Health Complex
Joynton Ave
Zetland
NSW 2017

(02) 9382 8189

Fax: (02) 9382 8188

Pre School (2-5 years)

Epilepsy or Fits or Seizures Click on this link to go to the page with more information about Epilepsy	- your Family Doctor who may refer you on to a Neurologist for EEG's and monitoring of the progressof AED's (Anti Epileptic Drugs)
Eye Problems or Strabismus	- your Family Doctor who may refer you on to an Eye Specialist
Dental Work	Westmead Dental Hospital Special Care Unit, Westmead Hospital, Dental Clinical School, Darcy Rd, Westmead NSW 2145 Phone: 9845 6766, 9845 7423 Fax: 9893 8671 Dental work for people with intellectual disabilities. Free general work for clients with a disability & a Health Care Card or Pension Card. Otherwise may be charged for treatment. Emergency treatment 9845 7363. Waiting period for non-emergency treatment is 1-2 months. Bring your Pension Card or Health Care Card, and a letter from your doctor stating your disability, Medicare number, name, address, date of birth & telephone number. Outside the Sydney Metropolitan Area Contact your local community health centre who should be able to advise the contact details for a dentist.
Dental Work	Special Needs Dentistry 45 Rowntree St, Balmain NSW 2041 Phone: 02 9810 5507 Fax: 02 9810 5349 Email: peterk@dental.wsahs.nsw.gov.au Oral health management of people with intellectual disabilities, mental illness, dementia, & medically compromised patients. Includes treatment of patients under intravenous sedation & general anaesthetic, oro motor function therapy & oral desensitisation.

Primary School Years (5-13 years)

Dental Work

Westmead Dental Hospital
Special Care Unit, Westmead Hospital, Dental Clinical School, Darcy Rd, Westmead NSW 2145
Phone: 9845 6766, 9845 7423 Fax: 9893 8671
Dental work for people with intellectual disabilities. Free general work for clients with a disability & a Health Care Card or Pension Card. Otherwise may be charged for treatment. Emergency treatment 9845 7363. Waiting period for non-emergency treatment is 1-2 months. Bring your Pension Card or Health Care Card, and a letter from your doctor stating your disability, Medicare number, name, address, date of birth & telephone number.

Outside the Sydney Metropolitan Area

Contact your local community health centre who should be able to advise the contact details for a dentist.

Special Needs Dentistry
45 Rowntree St, Balmain NSW 2041
Phone: 02 9810 5507 Fax: 02 9810 5349 Email: peterk@dental.wsahs.nsw.gov.au
Oral health management of people with intellectual disabilities, mental illness, dementia, & medically compromised patients. Includes treatment of patients under intravenous sedation & general anaesthetic, oro motor function therapy & oral desensitisation.

High School Years (13-18 years)

Dental Work	Westmead Dental Hospital Special Care Unit, Westmead Hospital, Dental Clinical School, Darcy Rd, Westmead NSW 2145 Phone: 9845 6766, 9845 7423 Fax: 9893 8671 Dental work for people with intellectual disabilities. Free general work for clients with a disability & a Health Care Card or Pension Card. Otherwise may be charged for treatment. Emergency treatment 9845 7363. Waiting period for non-emergency treatment is 1-2 months. Bring your Pension Card or Health Care Card, and a letter from your doctor stating your disability, Medicare number, name, address, date of birth & telephone number. Outside the Sydney Metropolitan Area Contact your local community health centre who should be able to advise the contact details for a dentist.
Dental Work	Special Needs Dentistry 45 Rowntree St, Balmain NSW 2041 Phone: 02 9810 5507 Fax: 02 9810 5349 Email: peterk@dental.wsahs.nsw.gov.au Oral health management of people with intellectual disabilities, mental illness, dementia, & medically compromised patients. Includes treatment of patients under intravenous sedation & general anaesthetic, oro motor function therapy & oral desensitisation.

Salivary Duct Treatment	- your Family Doctor who may refer you on to an Ear Nose and Throat Specialist who specialises in this treatment.

Adulthood (19 years onwards)

Dental Work

Outside the Sydney Metropolitan Area

Contact your local community health centre who should be able to advise the contact details for a dentist.

Disability Clinic

Adult Disability Clinic

Westmead Hospital, Hawkesbury Rd, Westmead, NSW 2145
Phone: 02 9845 6544
Held each Friday in the Outpatients Department by Dr Helen Somerville and Dr Barbara Field.
There is a proposal to include the setting up of additional clinics that target, Down Syndrome, Cerebral Palsy, Autism and Rett Syndrome.

Sleep Disorders

Eating Disorders

Last Updated: 09 August 2002