SOUTH AUSTRALIA

Angelman Syndrome Information

Contact:-  

Angelman Syndrome Association of South Australia
P.O. Box 2025
South Plympton SA 5038
Phone / Fax (08) 8371 4255
Email: simsclan@cobweb.com.au

Click on the image to go to the Angelman Syndrome Association of Australia website

Angelman Syndrome Association
PO Box 554
Sutherland  NSW  Australia  2232
Phone: (02) 9520 5857
Email: kevink@angelmansyndrome.org

   The clinic can provide information to families about the different aspects of Angelman Syndrome and is compiling a database of information relevant to Angelman Syndrome in Australia. Advice can be obtained about the different medical problems covered by Angelman Syndrome and where to go to get further help with specific medical problems.
 
 
 
 

Medical

Medicine

Therapy & Equipment

Government Agencies

Advocacy

Legal Services

 Community Organisations

 Respite

 Accommodation Services

Day Programs

Supported Employment

Early Intervention

Home and Community Support

Recreation Support

Special Education

Community Transport

Behaviour Disorders

Ungrouped

For those who want information about services outside of the Adelaide Metropolitan Area click on one of the areas below:-

     Medical
Most medical problems can be handled initially by your family doctor or paediatrician who may refer you to a specialist for further treatment and advice.
Below is a list of some of the medical problems that you may experience with a child with Angelman Syndrome and the medical specialty that caters for that area.

The advice given here is not a substitute for the proper care provided by a family doctor or specialist.

     Early childhood (0-2 years)

Poor Feeding or Suckling      your Family Doctor who may refer you on to a Paediatrician
Vomiting or Reflux             your Family Doctor who may refer you on to a Gastroentorologist
Weight Loss                                    your Family Doctor who will refer you on to a Gastroentorologist

 

     Pre School (2-5 years)

Epilepsy or Fits or Seizures  your Family Doctor who may refer you on to a Neurologist for EEG's and monitoring of the progress of AED's (Anti Epileptic Drugs)
Eye Problems or Strabismus your Family Doctor who may refer you on to an Eye Specialist

 

     Primary School Years (5-13 years)

     High School Years (13-18 years)

Salivary Duct Treatment your Family Doctor who may refer you on to an Ear Nose and Throat Specialist who specialises in this treatment.  

 

    Adulthood (19 years onwards)

    Medicines

    Sleep Disorders

    Eating Disorders

    Behaviour Disorders - Mood Disorders

The advice given here is not a substitute for the proper care provided by a family doctor or specialist.

For assistance that does not involve the use of medication
Assistance and program support in the form of a behaviour intervention program can be provided by a Behaviour Intervention Support Team (BIS Team), contact the Department of Human Services for information on this type of support. The team is made up of specialists such as psychologists, educators and program officers.

 

Area/Location

Company Name

Phone/
Mobile

Facsimile 
Email 
Internet 
Address

Greenwith Special Education & Disability Services

70 Thornton Drive,
Greenwith,
SA 5125

(08) 8288 7511 Fax: (08) 8288 7522

Email: ebc@primus.com.au

For treatment that involves the use of medication
Please consult a psychiatrist who will monitor the effect of medications used to assist in behaviour management and mood disorders.

The brand names below are the names used in Australia.
Click on the links to view a copy of detailed information about:

Aropax        (known as Paxil in the U.S.)
Melleril
Prozac
Risperdal
Ritalin

 

Last Updated: 18 February 2007
 

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