PO Box 364
Margate TAS 7054
Phone: (03) 6267 2025
PO Box 554
Sutherland NSW Australia 2232
Phone: (02) 9520 5857
Email: kevink@angelmansyndrome.org
Angelman Syndrome Information
Contact:-
| Angelman Syndrome Association of Australia Inc Tasmania PO Box 364 Margate TAS 7054 Phone: (03) 6267 2025 |
|
|
Angelman Syndrome Association of Australia PO Box 554 Sutherland NSW Australia 2232 Phone: (02) 9520 5857 Email: kevink@angelmansyndrome.org |
The clinic can provide information to families about the different aspects
of Angelman Syndrome and is compiling a database of information relevant to Angelman
Syndrome in Australia. Advice can be obtained about the different medical problems covered
by Angelman Syndrome and where to go to get further help with specific medical problems.
Medical
Most medical problems can be handled initially by your
family doctor or paediatrician who may refer you to a specialist for further treatment and
advice.
Below is a list of some of the medical problems that you
may experience with a child with Angelman Syndrome and the medical specialty that caters
for that area.
The advice given here is not a substitute for the proper care provided by a family doctor or specialist.
Early childhood (0-2 years)
Poor Feeding or Suckling - your Family Doctor who may refer you on to a Paediatrician
Vomiting or Reflux
- your Family Doctor who may refer you on to a
Gastroentorologist
Weight Loss
- your Family Doctor who will refer you on to a Gastroentorologist
Pre School (2-5 years)
Epilepsy or Fits
or Seizures -
your Family Doctor who may refer you on to a Neurologist for EEG's and monitoring of the
progress
of AED's (Anti Epileptic Drugs)
Eye Problems or Strabismus- your
Family Doctor who may refer you on to an Eye Specialist
Primary School Years (5-13 years)
High School Years (13-18 years)
Salivary Duct Treatment - your Family Doctor who may refer you on to an Ear Nose and Throat Specialist who specialises in this treatment.
Adulthood (19 years onwards)
Sleep Disorders
Eating Disorders
Behaviour Disorders - Mood Disorders
The advice given here is not a substitute for the proper care provided by a family doctor or specialist.
For assistance that does not involve the use of medication
Assistance and program support in the form of a behaviour intervention program can be
provided by a Behaviour Intervention Support Team (BIS Team), which is part of the
Department of Community Services. The team is made up of specialists such as
psychologists, educators and program officers.
For treatment that involves the use of medication
Please consult a psychiatrist who will monitor the effect of medications used to assist in
behaviour management and mood disorders.
The brand names below are the names used in Australia.
Click on the links to view a copy of detailed information about:
Aropax
(known as Paxil in the U.S.)
Melleril
Prozac
Risperdal
Ritalin
Area/Location |
Company Name |
Phone/
|
Facsimile |
| Plega Healthcare | 1800 648 648 | http://www.plega.com.au/ | |
| Battery Point | Department of Health and Human Services COMMUNICATION CONSULTANT Repatriation General Hospital |
(03) 6222 7305 | Fax: (03) 6222 7311 |
| East Devonport | Speak Easy Tasmania Inc 76 David St |
(03) 6427 9902 | |
| Glenorchy | First Aid Supplies Tasmania 34 Chapel St |
(03) 6273 1270 | |
| Sigma Independent Living McKay Ave |
1300 137 779 | ||
| Hobart | Mental Health Community Resource Centre 97 Campbell St |
1800 808 890 | |
| Tasmanian Medical Supplies 40 Brisbane St |
(03) 6234 9777 | ||
| Howrah | Tasmanian Wheelchair Specialist Howrah |
(03) 6247 9977 | |
| Kings Meadows | Tasmanian Wheelchair Specialist Kings Meadows |
(03) 6344 4848 | |
| Kingston | Statemed Pty Ltd 18 Mertonvale Cct |
(03) 6229 4733 | |
| Launceston | Ezy-Aid Bathroom Supplies 46 Canning St |
0417 168 087 | |
| Independent Living Centre, Tasmania Inc 46 Canning Street, |
(03) 6334 5899 1300 651 166 |
Fax:(03) 6334 0045 E-mail: info@ilctas.asn.au |
|
| Medical Care Products 208 Wellington St |
(03) 6344 4799 | ||
| McLean Health Care 26 Earl St |
(03) 6331 7140 | ||
| Leslie Vale | Medco Medical Sales & Service 51 Bullock Drv |
(03) 6239 6552 | |
| Lindisfarne | Ace Electric Scooters 22 Wellington Rd |
(03) 6243 5355 | |
| Ezy-Aid Bathroom Supplies PO Box 1389 |
(03) 6243 0066 | ||
| Moonah | Better Hearing Australia 28 Gormanston Rd |
PHONE/FAX: 03 6228 0011 |
http://www.betterhearing.org.au |
| Newstead | Tasmanian Hearing Aid Services 52 Elphin Rd |
(03) 6331 3366 | |
| North Hobart | Tas Orthotics 54- 58 Federal St |
(03) 6231 6144 | |
| Sandy Bay | Master Lifts P O Box 255 |
(03) 6231 3283 | |
| South Arm | Scooterman 3527 South Arm Rd |
(03) 6239 9090 |
Area/Location |
Name |
Phone/ |
Facsimile
|
| Disability Support Services | http://www.dhhs.tas.gov.au/ services/providing_support/ disability_support.html |
||
| Community Equipment Scheme | (03) 6222 7226 |
||
| Continence Service | (03) 6222 7303 | ||
| John L Grove Centre Aids and Appliances |
(03) 6336 4133 | ||
| Aids and Appliances | (03) 6434 6476 | ||
| Continence Service | (03) 6434 6475 | ||
| Burnie | Commonwealth Carelink
Centre Carers Association of Tasmania
Inc Disability Information Database Service |
1800 052 222 | http://www.health.gov.au/acc/cclinkc |
| Hobart | Anti-Discrimination Commission Tasmania Level 5 |
(03) 6224 4905 | Fax: (03) 6233 5333 |
Assessment Teams(Aged Care & Disability Services)1st Floor, |
(03) 6222 7274 | ||
| Commonwealth Carelink
Centre Council on the Ageing Disability Information Database Service |
1800 052 222 | http://www.health.gov.au/acc/cclinkc | |
| Department
of Health and Human Services 34 Davey
Street GPO Box 125B |
1800 067 415 | http://www.dhhs.tas.gov.au/ | |
| Office of the
Public Guardian 99 Bathurst Street |
(03) 6233 3085 | email: guardianship@justice.tas.gov.au | |
|
Department of Infrastructure, Energy and Resources GPO Box 1242 Hobart |
131 105 |
Email : passenger.transport@dier.tas.gov.au
http://www.transport.tas.gov.au/ |
|
| Launceston | Assessment Teams(Aged Care & Disability Services)John L Grove Centre |
(03) 6336 4144 | |
| Commonwealth Carelink
Centre Family Based Care Disability Information Database Service |
1800 052 222 | http://www.health.gov.au/acc/cclinkc | |
| Mowbray | Northern Disability Support Services PO Box 472 |
(03) 6326 3689 | |
| Ulverstone | Aged Care Assessment Team 48 Water St, Ulverstone Tas 7315 |
(03) 6429 8400 |
Advocacy
If you would like help getting the standard of service that you feel
is reasonable or access to a service these people may be able to help you.
Area/Location |
Company Name |
Phone/
|
Facsimile
|
| Glenorchy | Aurora Services 1a Chapel St |
(03) 6273 2949 | |
| Tasmanian Association of People with Disabilities
and Their Advocates Incorporated 15 Mill Lane |
(03) 6273 0916 | Fax (03) 6273 5156 | |
| Hobart | Speakout Advocacy Service 245 Elizabeth St |
(03) 6231 2207 | |
| Launceston | Citizen Advocacy Launceston Region Inc 25 St John St |
(03) 6331 2177 | |
| Sandy Bay | Advocacy Tasmania Inc Suite 6 236 Sandy Bay Rd |
(03) 6224 2240 |
Legal Services
If you need advice in relation to the legal rights of someone with
Angelman Syndrome these agencies may be able to hlep you.
Area/Location |
Company Name |
Phone/
|
Facsimile
|
| Launceston | Disability Discrimination Legal Advocacy Service Launceston Community Legal Centre |
(03) 6334 1577 | Fax: (03) 6331 5237 Email: Judith_Blades@fcl.fl.asn.au |
| Launceston Community Legal Centre PO Box 1582 |
(03) 6334 1577 or
toll free: TTY: 03 6334 1949 |
(03) 6331 5237 Email: lclc@vision.net.au |
|
Area/Location |
Company Name |
Phone/
|
Facsimile
|
| Battery Point | ACROD,
Tasmanian Division McDougall Building |
(03) 6223 6086 | Fax: (03) 6223 7290 E-mail: acrodtas@acrod.org.au |
| Down Syndrome Association Of Tasmania Inc
McDougall Building |
(03) 6224 0490 | ||
| Burnie | Family Based Care Assoc: N.W. Inc 14 Cattley St |
(03) 6431 8411 | |
| Family Planning Tasmania 1 Pine Avenue |
(03) 6431 7692 | Fax: (03) 6431 6743
|
|
| North West People with Disabilities Inc. PO Box 772 |
(03) 6431 1513 (03) 6435 1573 |
||
| Speak Out Association of Tasmania Inc 2 Spring St |
(03) 6431 9333 | ||
| Tasmanian Deaf Society Inc Haris Building |
(03) 6431 9296 | ||
| The Society For Multiply Disabled People Of
Tasmania Incorporated Burnie |
(03) 6433 3967 | ||
| Claremont | Tasmanian Deaf Society Inc 59 Cadbury Rd |
(03) 6249 5144 | |
| Derwent Park | TasCare
Society For Children 231 Main
Rd |
(03) 6272 8265 | Fax: (03) 6272 8365 |
| Devonport | Muscular Dystrophy Association of Tasmania
Inc 178 Parker St |
(03) 6424 9624 | |
| Glenorchy | Paraquad Association Of Tas Inc 26 Tolosa St |
(03) 6272 8816 | |
| Tasmanian Association Of People With Disabilities
& Their Advocates 15 Mill La |
(03) 6273 0916 | ||
| Hobart | Aged &
Disability Care Information Service "Westella"
|
1800 806 656 | http://www.adcis.org.au/ |
| The Carers Association of Tasmania "Westella" |
(03) 6231 5507 Freecall
|
Fax: (03) 6236 9236 email: catinc@tassie.net.au |
|
| Royal Guide Dogs For The Blind Association Of
Tasmania 164 Elizabeth St |
(03) 6232 1222 | ||
| Kidsafe C/- Tasmania Fire Service |
(03) 6230 8644 | Fax: (03) 6231 2672 | |
| Tasmanian Association for Mental Health 97 Campbell St |
(03) 6236 9529 | ||
| Kings Meadows | Tasmanian Deaf Society Inc Community Health Cntr |
(03) 6344 0555 | |
| Launceston | Autism Tasmania PO Box 1552 |
(03) 6362 2698 | |
| Crossroads Tasmania 96 Margaret St |
(03) 6331 9784 | ||
|
Civic Square |
(03) 6331 9100 | Fax: (03) 6331 4849
|
|
| Guide Dog Association Of Tasmania 83 Elphin Rd |
(03) 6331 8100 | ||
| Royal Guide Dogs For The Blind Association Of
Tasmania 83 Elphin Rd |
(03) 6331 8100 | ||
| Lenah Valley | Disabled Persons Inc (Tasmanian Association
Of) 20 Creek Rd |
(03) 6228 3164 | |
| Moonah | Cerebral Palsy Association Of Tasmania 77 Charles St |
(03) 6272 0222 | |
| Tasmanian Council On Intellectual Disability
(TCID) Shop 7 Moonah Centre |
(03) 6228 1911 | Fax: 03 6228 1911 EmailL tcid@southcom.com.au |
|
| Mowbray | Tasmanians With Disabilities Inc 340 Invermay Road |
(03) 6326 6534 Mobile: 0413 859 471 |
|
| New Town | Family Planning Tasmania 2
Midwood Street |
(03) 6228 5244 | Fax: (03) 6228 1222 E-mail: Famplan.Hobt@tassie.net.au
|
| Tasmanians With Disabilities Inc 1 St Johns Ave |
(03) 6278 8023 | Fax: (03) 6228 6001 | |
| Sandy Bay | Multiple Sclerosis Society Of Tasmania
15 Princes St Sandy
Bay |
(03) 6224 4111 | |
| Sorrell | Eastern Shore Group for People with Disabilities 59 Main Road
|
(03) 6265 2530 | |
| Ulverstone | Royal Guide Dogs For The Blind Association Of
Tasmania 1 Risby St |
(03) 6425 6322 | |
| Wesley Vale | A.Q.A. Tasmania 300 Wesley Vale Rd |
(03) 6428 4300 |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
| Burnie | Respite Burnie 1
Singline Ave |
(03) 6433 0467 | |
| Glenorchy | Aurora Services 1a Chapel St |
(03) 6273 2949 | |
| Latrobe | Respite Centre Latrobe 2 Hawkins St |
(03) 6426 2488 | |
| Lutana | Disability Services Respite Adults: Lucinda Pde |
(03) 6273 1314 | |
| Disability Services Respite Children: Lucinda Pde |
(03) 6228 3423 | ||
| Orana | Orana Respite Care Centre Respite Booking Service |
(03) 6427 9511 | |
| Rocherlea | Disability Services Rocherlea Respite |
(03) 6326 0100 |
Area/Location |
Company Name |
Phone/ |
Facsimile
|
| Burnie | Disability Support Services Reece House |
(03) 6434 6305 | http://www.dhhs.tas.gov.au/ services/providing_support/ disability_support.html |
| Multicap West Mooreville Rd |
(03) 6433 3967 | ||
| Burnie South | Coastal Residential Service Inc 7 Devon St |
(03) 6431 1454 | |
| Devonport | Devonfield Hawley Lodge 133 Middle Rd |
(03) 6424 6133 | |
| Devonfield Junior Service 44 Don Rd |
(03) 6424 3265 | ||
| Glenorchy | Sigma Independent Living McKay Ave |
1300 137 779 | |
| Hawley | Devonfield Hawley Lodge 21 Taroona St |
(03) 6428 6286 | |
| Launceston | Disability Support Services John L Grove Centre |
(03) 6336 4130 | http://www.dhhs.tas.gov.au/ services/providing_support/ disability_support.html |
| Northern Residential Support Group Inc Shop 17 City Plaza
Arc |
(03) 6334 3865 | Fax: (03) 6334 4161 E-mail: nrsg@peopleintegration.com |
|
| Lenah Valley | Disability Services Pottery Rd |
(03) 6278 7053 | |
| New Norfolk | Disability Services Willow Court Centre |
(03) 6261 9400 | |
| Disability Services New Norfolk |
(03) 6261 2677 | ||
| New Town | Disability Support Services"Woodhouse" |
(03) 6230 7600 | http://www.dhhs.tas.gov.au/ services/providing_support/ disability_support.html |
| L'Arche Beni Abbes Community Unit 2 12 Marsh St |
(03) 6228 3920 | ||
| Newnham | Laver Grove Group Home 43 Laver Gr |
(03) 6326 6567 | |
| Newstead | St Giles Home 65 Amy Rd |
(03) 6344 2451 | |
| Nubeena | Disability Services Nubeena |
(03) 6250 2105 | |
| Oatlands | Disability Services Oatlands |
(03) 6254 1434 | |
| Ouse | Disability Services Ouse |
(03) 6287 1301 | |
| Stieglitz | St Giles Home 185 St Helens Point Rd |
(03) 6376 3171 | |
| Woodbridge | Disability Services Dover Channel |
(03) 6292 1743 | |
| Wynyard | North West Residential Support Services Inc. PO Box 254 |
(03) 6442 2920 | |
| Youngtown | Neena Residential Facility 32 Quarantine Rd |
(03) 6344 8885 |
Area/Location |
Company Name |
Phone/ |
Facsimile
|
| Battery Point | Parkside Leisure Tas Pty Ltd 5 Battery Sq |
(03) 6224 2535 | |
| Devonport | North West Day Support Services 115 William St |
(03) 6423 3002 | |
| Glenorchy | Aurora Services 1a Chapel St |
(03) 6273 2949 | |
| New Town | Cosmos Recreation Services 52 New Town Rd |
(03) 6228 6394 | |
| Rocherlea | Adult Day Support Service 3 Archer St |
(03) 6326 0100 | |
| Ulverstone | North West Day Support Services 1 Grove St |
(03) 6425 1567 |
Area/Location |
Company Name |
Phone/ |
Facsimile
|
| Battery Point | Parkside Training Service 5 Battery Sq |
(03) 6224 2535 | |
| Burnie | North West Employment Service 20 Reeves St |
(03) 6432 3448 | |
| Glenorchy | The Old Chapel Tearooms 1 a Chapel St |
(03) 6273 2949 | |
| Launceston | Self Help Workshop P.O Box 542 |
(03) 6344 7133 | Fax: (03) 6343 0651 Email: info@selfhelp.com.au |
| New Town | Access Employment PO BOX 29 |
(03) 6228 0712 | |
| Youngtown | Self Help
Workshop Inc 414 Hobart Rd |
(03) 6344 7133 | Fax: (03) 6343 0651 Email: info@selfhelp.com.au |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
|---|---|---|---|
| Hobart | Early Chilhood Intervention
Australia (TAS) Early Special Education
Centre |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
|---|---|---|---|
| Clarence Community Options Clarence City Council |
(03) 6245 8705 | Email: clarence@ccc.tas.gov.au http://www.ccc.tas.gov.au/ |
|
| Glenorchy | Glenorchy
Community Options Glenorchy City Council |
(03) 6274 0700 | Email: gccmail@glenorchycc.tas.gov.au |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
|---|---|---|---|
| Battery Point | Riding for the Disabled Association of Tasmania PO Box 99 |
(03) 6224 9497 | Fax: (03) 6272 0524 Email: helenbec38@hotmail.com |
| Glenorchy | Aurora Services 1a Chapel St |
(03) 6273 2949 | |
| Riding for the
Disabled Assoc of TAS The Secretary |
(03) 6272 6812 | Email: rast@netspace.net.au | |
| Prospect | Tasmanian Sport and Recreation
Association for People with a Disability (TasRAD) PO Box 324 Location: |
(03) 6336 2012, Mobile: 0417 362 014 |
Fax (03) 6336 2014 Email: tasrad@tassie.net.au |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
|---|---|---|---|
Area/Location |
Company Name |
Phone/
|
Facsimile
|
|---|---|---|---|
| Burnie | Community Transport Service Tasmania 16 Cattley St |
(03) 6431 9225 | |
| Glenorchy | Aurora Services 1a Chapel St |
(03) 6273 2949 | |
| Hobart | Community Transport Services Inc 108 Bathurst St |
(03) 6231 0494 | |
| Sandy Bay | Hobart & Southern Maxi Taxis PO Box 725 |
(03) 6227 9577 | |
Area/Location |
Company Name |
Phone/
|
Facsimile
|
| Cooee | Community Connections Incorporated 41 Saundridge Rd |
(03) 6432 3610 | |
| Devonport East | Glee Club Inc 62
Tarleton St |
(03) 6426 1831 | |
| Firthside | Manor Gardens Club 3 Manor Gardns |
(03) 6229 8792 | |
| George Town | Wattle Group Inc 14 Anne St |
(03) 6382 3627 | |
| Glenorchy | Oak Enterprises 56 Clydesale Ave |
(03) 6272 8244 | |
| Hobart | Colony 47 Inc 47 Davey St |
(03) 6223 6159 | |
| Optia Incorporated 440 Elizabeth St |
(03) 6231 0638 | ||
| Side by Side 107
Murray St |
(03) 6231 3621 | ||
| Kings Meadows | R.A.F.T. McHugh
St |
(03) 6344 8116 | |
| Voluntary Support Service McHugh St |
(03) 6344 0549 | ||
| Launceston | Ellison House 18
a Ellison St |
(03) 6344 1568 | |
| New Horizons Club 18 Vincent St |
(03) 6331 8922 | ||
| NGT Tasmania 53
Canning St |
(03) 6334 2266 | ||
| Northern Integration Support 36 Paterson St |
(03) 6334 1622 | ||
| St Michael's Association Inc 48 George St |
(03) 6334 2574 | ||
| Toy Town Toy Lending Library 34 Paterson St |
(03) 6331 2212 | ||
| Mt Stuart | Access Charters 98 Mt Stuart Rd |
(03) 6234 5985 | |
| New Norfolk | Moondani Incorporated Blair St |
(03) 6261 4468 | |
| New Town | Community Based Support South 11 Clare St |
(03) 6228 6600 | |
| Headway Support Services PO BOX 29 |
1300 138 296 | ||
| People Works Pty Ltd P.O.Box 91 |
0418 519 698 | ||
| The Equipment And Technology Library 31 b Tower Rd |
(03) 6228 6311 | ||
| Toy Town Lending Library 1 Tower Rd |
(03) 6228 4196 | ||
| Newnham | Wattle Group Inc 107 George Town Rd |
(03) 6326 1135 | |
| Newstead | St Michael's Association Inc 22 Hoblers Bridge Rd |
(03) 6331 7651 | |
| North Hobart | Hear A Book Service (Tasmania) Inc 6 Letitia St |
(03) 6234 1101 | |
| Rocherlea | Wattle Group Inc 3 Archer St |
(03) 6326 8580 | |
| Warrane | Oakdale Industries Bounty St |
(03) 6244 2277 (03) 6244 8846 |
|
| Wilmot | Hear A Book Service (Tasmania) Inc 154 Goodland Rd |
(03) 6492 1417 | |
| Zeehan | West Coast Aged & Disability Care 100 Main St |
(03) 6471 6172 |
Last Updated: 04 June 2002
